Speech Changes

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Common side effects from Head and Neck Cancer treatment...

Your voice might get hoarse or husky if you have radiotherapy treatment to your voice box for cancer of the larynx. It could disappear completely for a while during and after the treatment. It should come back within a few weeks but may never sound quite the same as it was.

Radiotherapy for other types of head and neck cancer might make your voice change a little during and for a few weeks after the treatment. Your voice should go back to normal once your treatment ends.

If you lose your voice or your ability to speak clearly, it is natural to feel distressed, frustrated and angry at times.

People around you may need to learn new ways to communicate with you and take time to listen carefully. If your voice or speech has changed, some people might pretend to understand what you’re saying so they don’t upset you, or because they’re embarrassed to say they don’t understand. This can be frustrating and you may feel uncomfortable or alienated.

+ Loss of Speech

Some people lose the ability to speak clearly or produce voice due to surgery to their mouth or the removal of their larynx. You may find it helpful to:

gesture, point, nod, smile, or mouth words
ring a bell to call people
write on a pad or whiteboard, or point to pictures on a board
use a computer, mobile phone or other device to type messages
use the National Relay Service – relayservice.com.au.

You will work with a speech pathologist to improve your speech and learn strategies for communicating with your family and friends.

Although this can be challenging, most people who have had surgery are able to learn techniques to talk again. A counsellor or psychologist can help you address any problems or frustrations.

+ Having Speech Therapy

Three main methods your speech therapist may try after a total laryngectomy are: Oesophageal speech -You swallow air and force it up through your oesophagus to produce a low-pitched burp. This technique may be difficult and usually requires training.

Mechanical speech – A battery-powered device creates a vibrating sound when it is held against the neck or cheek or placed inside the mouth. You press a button attached to the device when you want to speak.

Tracheoesophageal speech – Your surgeon may create a puncture between your trachea and oesophagus during the laryngectomy or later on. Your surgeon may insert a voice prosthesis (or valve) to direct air from your trachea into the oesophagus. This creates a low-pitch, ‘throaty’ voice. Talking will take time and practice. You will need to get used to the way your new voice sounds. If you are feeling self conscious about the change, counselling may help.

Professor Iain Hutchison

Civilian Consultant in OMFS – The British Army

Honorary Chief Executive – Saving Faces-The Facial Surgery Research Foundation

Director – The National Facial, Oral and Oculoplastic Research Centre (NFORC)

Honorary Consultant Oral and Maxillofacial Surgeon – Barts Health

Professor of Oral and Maxillofacial Surgery – Barts and the London Medical and Dental School, Queen Mary University of London

Professor Iain Hutchison treated patients with diseases, deformity and injuries affecting the most socially important part of our bodies – the face.

He funded the Saving Faces art project which has toured the world demystifying facial surgery for the general public and participated in many programmes about facial surgery including a TED talk entitled “Saving Faces

He founded the surgical research charity Saving Faces 24 years ago which leads international multi-centre clinical trials improving the prevention of and treatment for facial disease and injury.

Just one of Saving Faces research projects was the first ever, and still the only, nationwide surgical prospective trial of any head and neck cancer. The trial (SEND) compared two standard treatments for early mouth cancer evaluating which had the highest cure rate. We found that both treatments were very successful in curing early mouth cancer without any need for chemotherapy or radiotherapy. However one method, taking out the neck glands as well as the cancer, cured 30% more patients. This means that every year 30,000 more patients worldwide are cured as a result of the SEND Study.

Since the results were published in 2019, all the world guidelines have changed to recommend the better of two good treatments and save the lives of 30,000 patients around the world every year. You can read the full paper here.

We succeeded where many other studies failed because of our collaboration between 68 UK surgeons treating 614 patients at 26 UK hospitals. This national collaboration is still the only nationwide multi-centre study comparing two different surgical treatments for any head and neck cancer. Our findings are applicable for all surgeons worldwide because of the large numbers of surgeons from different backgrounds who operated on the patients.

Saving Faces is now running a campaign to fund the Alan Rickman Professorship of Facial Surgery. Alan was a founding Patron of Saving Faces and when he launched their National Research Centre (NFORC) said “I believe Saving Faces next project is to appoint an outstanding surgical Professor”.

This campaign has two aims, firstly, the Professor’s research will improve the faces and lives of thousands of people worldwide. Secondly, keeping the name and voice of Alan alive, forever associating him with this Professor’s research and great advances in treating facial disorders. Millions of people loved Alan and miss him. We are giving them an opportunity to honour him.

Michael Caines MBE DL

Chef Owner Michael Caines Collection

Title of Talk: Michael Caines – The Art of Flavour

Michael Caines MBE, chef patron of Lympstone Manor, is known as one of Britain’s most celebrated and acclaimed Michelinstarred chefs.

Having grown up in the South West of England, Michael has earned a global reputation for his distinctive modern cuisine,
which champions the finest local produce and suppliers, combined with influences from his global travels.

After attending a local Catering College in Exeter Michael’s talent was evident and this was followed by three years at Le Manoir aux Quat’Saisons with Raymond Blanc. He then furthered his experience travelling to France to study under Bernard Loiseau and Joël Robuchon.

In 1994 Michael returned to the UK to take up the position of head chef at Gidleigh Park in his home county of Devon. It was at Gidleigh that Michael achieved two Michelin stars. Both of which he retained for 18 years and earned within just four After 21 years at Gidleigh, in April 2017 Michael struck out on his own, opening Lympstone Manor – the luxury 21- bedroom country house hotel in a Grade II Georgian mansion in East Devon.

Lympstone achieved its first Michelin star within six months of opening. The hotel now holds 5 AA Rosettes as of the AA Hospitality Awards 2020. Keen to keep Lympstone fresh, Michael has built a vineyard on site, overlooking the Exe estuary and featuring approximately 17,500 vines. Lympstone is also the home to motoring festival – Celebration of Speed- an annual event commemorating Michael’s love of all things motoring.

In 2006 Michael was awarded an MBE for contributions and services to the hospitality industry and made a Freeman of the City of Exeter for his work impassioning the hospitality industry in the local area. Michael also created the Michael Caines Academy at Exeter College – of which he is alumnus – as well as The Michael Caines Foundation which supports numerous charities including Families for Children, Farms for City Children, The Exeter Foundation, One for the Boys, WESC and Devon Wildlife Trust.

Firmly rooting himself in the South West, Michael’s other projects include The Cove Restaurant and Bar at Maenporth, The Harbourside Refuge in Porthleven and 2021 will welcome a fourth site, Mickeys Beach Bar and Restaurant on the Exmouth shoreside.

Michael is a familiar face on television, appearing regularly on BBC’s Saturday Kitchen, Great British Menu and MasterChef and has authored a cookbook, Michael Caines at Home. He is an AA Chef’s Chef of the Year and has cooked at 10 Downing Street as well as being partner and ambassador for the Williams Formula 1 Motor Racing team, overseeing catering for the Grand Prix across the globe. Michael is also the co-founder of UK hotel chain, aBode and the Chef Representative of luxury hotel group, Relais & Chateaux, of which Lympstone is a proud member. More recently, Michael created a selection of all-natural flavours for premium US-based CBD soda brand, Isca.

www.michaelcaines.com

Media enquiries:
For further information please contact [email protected]

Michael J Passineau, PhD

Vice President and Head of Salivary Gland Therapeutics

MeiraGTx

Title of Talk: Results of a phase 1 open-label, dose escalation study of gene therapy with AAV2-hAQP1 as treatment for radiation‑induced xerostomia and parotid gland hypofunction

2021- Present, Vice President and Head of Salivary Gland Therapeutics, MeiraGTx (NASDAQ:MGTX). MeiraGTx is a global gene therapy company with corporate headquarters in New York City, and primary manufacturing facilities in London and Shannon, Ireland. MeiraGTx develops and manufacturers and develops gene therapy vectors in inherited retinal diseases (partnership with Janssen), central nervous system disorders and salivary gland dysfunction. My role encompasses oversight of clinical drug development and research for the company’s lead candidate, AAV2-hAQP1, a gene therapy agent intended to treat radiation-induced xerostomia and Sjogren’s disease, as well as other undisclosed therapeutic candidates. AAV2-hAQP1 completed a Phase 1 clinical trial in March 2023, and the company has begun dosing a Phase 2 trial in June, 2023.

Formerly 13 years at Allegheny Health Network, Drexel University College of Medicine, Pittsburgh Campus (Allegheny General Hospital). Retired as full Professor, Drexel University CoM, in 2021.

BA in Chemistry/Bible – Cedarville University

PhD (Neuroscience) – University of Miami

Post-doctoral fellowship – University of Alabama at Birmingham

Formerly 13 years at Allegheny Health Network, Drexel University College of Medicine, Pittsburgh Campus (Allegheny General Hospital). Retired as full Professor, Drexel University CoM, in 2021.

BA in Chemistry/Bible – Cedarville University

PhD (Neuroscience) – University of Miami

Post-doctoral fellowship – University of Alabama at Birmingham